Three Twenty One

World Down Syndrome Day 3/21: @themerrythought
Those with down syndrome have 3 copies of the 21st chromosome, which is why we celebrate World Down Syndrome Day on 3/21. A little over three years ago on the 21st of October I gave birth to a baby girl. I had experienced a healthy pregnancy and we had not received a prenatal diagnosis. However, the moment I saw my baby girl, I knew.. she was born with Down syndrome. I went numb. I was sad and I was scared. I think a part of me will always feel guilty that I didn’t experience joy when I saw her. But I didn’t know. I didn’t know what our lives would look like. I didn’t know what her future would look like. I didn’t know her. I would like to share a few things that I wish I had known that day when they passed me my sweet baby girl.
World Down Syndrome Day 3/21: @themerrythought
You have a… baby.
She may happen to have Down syndrome. But she is a baby. A beautiful perfect newborn baby. She has soft skin, she smells fantastic, she will sleep a lot… you know, just like any. other. baby. I remember the moment my husband and I decided to let go of our fears and simply enjoy our baby girl. Thankfully it was just a couple days after she was born. Don’t get me wrong, there were still tears. There was still uncertainty, but we didn’t let the fear overcome the joy. We talked about how we would have the rest of our lives to figure the future out. For now we were going to soak up these beautiful days with our baby girl. And it was beautiful.
World Down Syndrome Day 3/21: @themerrythought
She is yours.
Well meaning people will share things to try to be helpful. For us, this was sometimes more upsetting than helpful. Please remember, their story is not your story. Their child is not your child. Down syndrome or not, every child is different and God has blessed you with a child meant just for you.
World Down Syndrome Day 3/21: @themerrythought
World Down Syndrome Day 3/21: @themerrythought
You are blessed.
Lots of people will tell you this. You may want to punch them in the face and perhaps rightfully so, because most likely they have no clue what they’re talking about.. 😉 But I know, so I will tell you. You are blessed. In a way that you can’t understand, you won’t understand, for months ..or maybe years. But someday you will get it. You will wish you could go back to the moment you found out your little one has Down syndrome. You would tell yourself that everything will be ok. More than ok. Oh, the heartache and tears I could have saved myself if I somehow could’ve grasped this in the beginning. Your life will be better because of this little person. This little person will fill your heart with pride and unspeakable joy. She will fill your house with laughter and fun, just like you always dreamed your child would.
World Down Syndrome Day 3/21: @themerrythought
World Down Syndrome Day 3/21: @themerrythought

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  • Friday, March 21, 2014 - 3:00 pm

    Courtney - She is beautiful, and I love that you celebrate the blessing that she is.

    My cousin has down syndrome, and I am so encouraged to see your thoughts and raw feelings written here.

    -CourtneyReplyCancel

  • Friday, March 21, 2014 - 4:37 pm

    kristaannie - Thank you so much for this beautiful post, and the beyond adorable pictures.ReplyCancel

  • Friday, March 21, 2014 - 4:42 pm

    Dennie White - This is a lovely post. I hope in the future to adopt a child with downs syndrome. I think i could offer them a good life.

    Your daughter is gorgeous by the wayReplyCancel

  • Friday, March 21, 2014 - 4:42 pm

    Alicia - This was an absolutely beautiful post, thank you so much for writing it. What an adorable little girl you have there.ReplyCancel

  • Friday, March 21, 2014 - 4:43 pm

    Jessica Angeles - This was so beautifully written! I work with children with down syndrome and autism and it warms my heart when I see bloggers write such profound and loving things about their kids on the spectrum. Your daughter is beautiful! So long as you always push to give her the best childhood possible, she will always be okay 🙂 xoxoReplyCancel

  • Friday, March 21, 2014 - 5:00 pm

    Kristen Kristen - Beautiful post & beautiful family. xoxReplyCancel

  • Friday, March 21, 2014 - 5:10 pm
  • Friday, March 21, 2014 - 5:58 pm

    Jessica - Stunningly beautiful post, mama! Your little girl is a doll baby. Thank you for sharing these words!

    Love and light!
    JessicaReplyCancel

  • Friday, March 21, 2014 - 7:52 pm

    amiechristo - This post was so beautiful and heartfelt. Thank you for sharing with all of us. And your daughter is adorable. That smile is beautiful. 🙂ReplyCancel

  • Friday, March 21, 2014 - 10:18 pm

    Miranda Hall - Your little girl is beautiful. Twenty nine years ago I gave birth to my first child…a little girl I named Lacie. We did not know right away as you did. Our journey took four years of doctors and specialist and more tears than I knew my body could store. We had difficult years and many times I questioned God knowing for certain I was the wrong match for this child. She is the reason my husband gave his life to Jesus…there is no greater gift than that. Although raising her was a challenge she has grown to be a beautiful young lady. We are blessed, a blessing in disguise that took a long time for me to find. Your post is so beautifully written and I hope encourages other young mothers such as yourself.ReplyCancel

  • Saturday, March 22, 2014 - 1:43 am

    Lyndsay - Love that little girl to pieces and her Mama too! Filled with pride to the point of tears to call her my niece and you my sister. XoxoReplyCancel

  • Saturday, March 22, 2014 - 11:55 am

    Kate - I came across this beautiful video the other day and thought of you.
    I don’t know you, and yet I ‘m thankful mothers like you still exist!

    http://www.dailymotion.com/video/x1i8zzy_dear-future-mom-march-21-world-down-syndrome-day-dear_news#from=embediframeReplyCancel

  • Saturday, March 22, 2014 - 1:46 pm

    Jen - Very sweet words 🙂 Your girl is such a treasure!ReplyCancel

  • Saturday, March 22, 2014 - 11:20 pm

    jan - She is so adorable, and i loved this post!ReplyCancel

  • Saturday, March 22, 2014 - 11:22 pm

    poindextr - bless her heart! she looks like a heart full of joyful wonderfulness!ReplyCancel

  • Sunday, March 23, 2014 - 10:24 am

    Tamsin - This made me cry. Thank you so much for posting this – it’s something I’ve been worrying about a lot in the past few months and this fills me with hope. Your little girl is so beautiful. xxReplyCancel

  • Sunday, March 23, 2014 - 10:44 am

    MelissaW - What a beautiful little girl. You’re loving words are a blessing to others who have and will go through the same type of journey.ReplyCancel

  • Sunday, March 23, 2014 - 1:35 pm
  • Sunday, March 23, 2014 - 11:06 pm

    Samantha - Your family is beautiful and the words you write are so true and raw. Thank you for being honest and sharing your story <3ReplyCancel

  • Monday, March 24, 2014 - 11:59 am

    saidkelley - beautiful.ReplyCancel

  • Wednesday, March 26, 2014 - 1:37 am

    colleenpastoor - Thank you for such a lovely post- she is so beautifulReplyCancel

  • Wednesday, March 26, 2014 - 7:34 am

    Pat schwab - Thank you for sharing your raw honest emotion with us. I just watched the video one of your readers suggested and it was beautiful. It brought tears to my eyes. A mothers love is never ending. I love how cute your daughter looks in these photos with her hat.ReplyCancel

  • Wednesday, March 26, 2014 - 5:29 pm

    emilyojukacall - I love this post. You’ve inspired me to be a more loving mother, so thank you for being so authentic!ReplyCancel

  • Sunday, March 30, 2014 - 9:55 am

    Dana Tartaglia - Although I’ve been reading and following numerous blogs over the past few years, I’ve never once posted a comment until right now. I almost missed your post while scrolling down my bloglovin feed, but the sight of your adorable daughter caught my eye immediately. I will admit I’m a little biased in my belief that little kids with Down Syndrome are the cutest since my 21 year old younger brother was born with it as well. I get really upset sometimes when I hear stories about parents who treat the diagnosis as a tragedy, when I can’t look at my brother and everything he has given to my family as anything other than an enormous blessing. I obviously can’t completely relate since it’s a totally different story as a parent, but I can tell you my dad was terrified and felt almost guilty after my brother was born (it was clear right away), but I think that all just disappears after some time has gone by and it’s not the end of the world and then the first thing you see when you look at your amazing child isn’t their disability, but everything they are despite it. My dad always says my brother is “enabled” instead. He’s the most positive, confident, happy, warm, funny, and just all-around incredible human being and the best friend I’ve ever had. I wouldn’t want him to have been born any differently.

    I’m sorry for rambling, but I just want to thank you for such a beautiful, genuine, and meaningful blog post. It really made my morning wonderful, and I can’t wait to share it with my mom. Thank you and take care!ReplyCancel

  • Monday, March 31, 2014 - 9:19 am

    Victoria / Justice Pirate - What an amazing story this was indeed.ReplyCancel

  • Monday, March 31, 2014 - 6:14 pm

    Ellen - She is absolutely beautiful and looks like joy personified. Precious girl.ReplyCancel

  • Tuesday, April 21, 2015 - 10:08 pm

    Heather House - I love this! My daughter also has Down syndrome. She’s no angel (she’s almost two), but she’s my pride and joy. I’m going to make that diy pallet swing bed and read to her on it all summer. I’ll send you a pic!ReplyCancel

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